This comment is 90% OT. In fact, I haven’t read the post!

What I saw was you are from Long Island, which I probably saw in the past, but it didn’t sink in.

I recently sent an email to you office (which I think I sent before–know I intended to do it, but not sure if it made it from my mind to my keyboard) about the Lyme situation. I never received a confirmation that it was received–not that I asked for or required it, beyond my urgent wish that you at least get the info in your hands. So to that end, I am writing here to do double diligence.

So, the most pertinent details to catch your attention and inspire you to track down that email:

1. uber common misdiagnosis for Lyme: Parkinsons, Alzheimers, Chronic Fatigue, Fibromyalgia, Chronic Fatigue, Lupus, ALS, MS. There are over 350 misdiagnoses for this disease. (which rather than Lyme, would be more accurately titled Multiple Infectious Disease Syndrome).

2. false negatives in testing are rampant, even amongst what are called Lyme Literate Medical Doctors. If they are not ridiculously on their game, they miss the diagnosis. I have heard dozens of stories of people who went to an LLMD, got a negative, the Lyme possiblity was dismissed, then 5, 10, 20 years go by, and someone finally finds it. Meanwhile, a life was ruined.

3. check out the Oscar nominated “Under Our Skin” free download on Netflix to get a quick sketch of the situation/cover up. PBS played the hell out of it, but to little avail it appears. The public and MD’s remain largely ignorant. Even greats amongst environmental and integrative MD’s are not completely grogging this situation.

2.Long Island is considered hyper hyper hyper endemic: as in, there is a good chance that every single person raised on Long Island is carrying it with varying degrees of manifestation from zip to death. The CDC is covering the extent of this up. Russia is more on top of this and more public with this (now global) hidden epidemic. My boyfriend is Russian and recently found a news piece that reported a Russian study done to try to get a grip on how widespread the epidemic is. With (even faulty!) testing, they showed that in hyperendemic areas, 80% of the population is showing antibodies, and in major cities, 40%.

Hopefully you already know all of this….

Wishing you and yours very very well!

Congratulations on all of your recent projects. Ole!

e